Writing is my passion. It always has been. It doesn’t matter what you ask me to write about, I’ll love it. College was an oasis of wonder for me. I loved writing essays. I loved to challenge the status quo or argue a point or share what I thought on a topic. And when they dropped creative writing in my lap, I practically melted on my keyboard. But wait. Then later on people started paying me *in real cash money to write. I was published in several publications and even in a couple of books. When an agent came to me (yes-she came to me) asking for a query and signed me with her agency? I died, went to heaven, made St. Peter slap me upside the head and came back to do more writing. I love it that much.
And then came the chronic daily headaches. And the migraines. And the bone crushing fatigue. Those are not good conditions for writing. In fact, it’s like I’m in prison with these health issues when it comes to my beloved passion and that isn’t fair. In fact it sucks. Someone recommended I try Dragon or another voice to text app but that isn’t the same. It’s not the fingers flying over the keyboard. Or the rush you get when you almost feel like you are no longer in the driver’s seat because the words are flowing so fast the story has taken over and your hands are merely the method to bring the story to life. Now, when I write for a long time, I pay the price in pain. My head. My eyes. My joints. I’m being literal here. I literally pay a physical price to write every word on this blog.
Oh, but what a beautiful price it is. I love writing so much. I love every thing about it. It is truly my passion. So when you see a blog post from me, know that is truly a labor of love. I wrote it from the prison my body locked me in and I refuse to let it hold me back. Words. My words. My stories. I won’t stop. This is my passion. My love. The one thing I know will always be soothe me even when it hurts me.
When you have so much going on or you are pulled in so many directions or (like me) you are knocked on your ass by health issues, if nothing else I have learned you must find your happy place and find some peace. Now, I know that most people have a physical happy place they want to go to find peace but that isn’t always possible. So, figure out where your mental happy place is. I’ve found peace in music. Sometimes it’s lyrics that speak to me. Sometimes it’s the rhythm. Sometimes I just get lost in the past with those golden oldies from the 80’s. But, ohhhh, when I need to work out angst or I am up and around and having a “hell yeah I’m doing things today” kind of day, I get my groove on. And at my age and with all the other crap I deal with on a daily basis, I truly don’t care what anyone else thinks.
One of my favorite things is car dancing. My daughter and I are huge car dancers. Don’t worry, I’m safe about it. The thing about not giving a damn about what anyone else thinks, you can usually pass your joy along to someone else. Maybe they smile and give you a thumbs up. Maybe they are laughing their ass off at you. Maybe their day sucked and when they glanced over and saw us totally getting our groove on to some random song that we liked and our funky groove movement were all in sync, and that made them laugh. Win/win.
Just find what makes you happy and do it. And don’t give a damn what people think. Just find your happy place inside yourself and let it loose. Dance in your underwear. Sing at the top of your lungs. Jog like Phoebe and look like a fool. Just do it and don’t bother with what other people think. Because you are too busy being happy in your happy place. And when you’re there? It is contagious. I promise you’ll make other people smile or laugh (even if it is at you) or even want to join you. The most important part of this is to find your happy place because we all need to retreat from the chaos and craziness that is life. Don’t wait until you are overwhelmed. Dust off you happy place. Give it a spit shine and air it out. It’s time to visit it more often. You need to take care of you. Yes, YOU.
And kids, that’s why you shouldn’t be an asshole like I was
In case this isn’t permanently written on all of your calendars, this is my birthday month. More specifically, on Saturday, the 7th. You still have time to shop. But it’s okay to be late because you have all month.
Actually, this birthday is kind of a big deal to me. No, it isn’t a big number birthday or one that anyone else would evenn give a second thought. In truth, I’ve only told one person about why this birthday not only has me on edge but why I want to make it special. Because of all of that, she and I made plans to celebrate it together. We started these plans many months ago.
I can’t tell you how excited I was. Not just because I was going to spend my birthday with one of my closest friends but because she understood me and didn’t laugh when I told her why this birthday meant something to me. Just a couple of weeks out, I was finalizing flight plans etc. and texting back and forth to make sure it would all work out. (We were waiting on word from work.) Well, you know how they say “Make plans and God laughs”? Well, he was down right rolling in tears with this one. (I mean, hell, we’ve been trying this for years.) While I was about to book my ticket, she texted me and said it would just be better for me to not come at all.
My heart shattered right there on the spot. I spent two days crying. I felt at the moment like I became the expendible friend. So easily tossed aside rather than one you want around when you need someone. It just hurt on many levels. I felt like I lost my best friend. (Other factors contributed, too. But, this felt like the final demotion.) And you know what it actually made me? A totally and complete asshole.
Yes, I was the absolute and total asshole here. You see, she has been living in crisis mode for…well… months. Trying to take care of everyone. Pulled in so many directions, I don’t even know how she is still standing. I’ve never met someone stonger with so much compassion in my life. She’s the friend every one wishes they had. And what did I do? I spent two days crying thinking of only myself and how I might be effected. See? Total asshole. That’s not what you do to the people you love. You just don’t treat your people that way. I am sorry. So sorry. There are times I can hardly breathe it hurts so much that I hurt a relationship so much. But you just can’t take some things back. We have barely spoken since then. Life is busy. Plans change. Health and work and family and life take over and before you know it, it has been weeks since you’ve talked.
So, in short (Ha! Nothing is short with my writing.) I let down a friend by being an asshole when she needed me because I was thinking of myself. And now? Now I have to pick up the pieces and hope we’ll be okay. It’s going to take time. And that sucks.
The moral of the story, take a step back, take a deep breath, and look at both sides of what is going on before you act like an asshole or you may hurt one of the most precious relationships you have. Don’t be me, kiddos!
When my boys were young- and I mean really, really young– they found a very unique way of calling each other when they wanted to talk to or find the other. In fact, I don’t remember a time when they didn’t do this. It was startling at first. You see, one would let out the bellow of a peacock call and from somewhere in the depths of the back of the house you could hear the sound of the other one returning the call. Sometimes it would stop then. Other times if it was really important like an online game or a funny video, the calls would go back and forth until they were in the same room. At the young age that it started, I don’t know how they picked it up. I have heard that it is deafening at cons like Quakecon but the boys had never been to something like that when they started their traditional tribal like call. Even my daughter picked it up rather young.
It became normal in the house. It was, however, hilarious when we had guests. We were used to it. Company? Not so much. Once when my sister had been visiting, two days into her trip she look up from her magazine and sighed looking at me in defeat saying, “Your house is really loud.” I did what any frat house mom would do and burst out laughing. She’s right. And I love the noise.
One would think that would be something for the home only. But no. They find each other in public that way, too. In fact, to be honest, we all do. A few years ago when we were at Disney in line for Space Mountain, they wanted to test the whole herd mentality business and started calling each other- while standing beside each other. Of course Gabby started in. Then their cousins. It wasn’t long before other people in the line started. Before we knew it, most of the people shoved in like sardines in line in a very echoing echo hell, were all doing the peacock call. I was doubled over laughing uncontrollably, legs crossed, trying not to pee my pants. My sister looked slightly horrified. My kids looked cocky with pride. Gosh I adore my kids. They are pretty awesome. And always entertaining.
So if you are out and about and hear a peacock call, just return it. Chances are pretty good it’s one of my family. Or me. Find us and say howdy!
(Warning: This just may be the most boring post you’ll ever read from me. I just wanted to educate y’all before we move forward.)
One of the things that is going to change around here is the fact that my “babies” are grown up. I have a 20-something, a just about to be 20, and a high schooler. So, my days as a momblogger are fading. Their stories are theirs to tell. I’ll still share some of our family fun because, well, we aren’t the normal family. We are loud, sarcastic, (at times) inappropriate, and we have one helluva good time. There is too much fun to not share those family times.
However, when it comes to my stories, you’re going to hear more about my medical conditions. It’s not that I want to whine or gain symathy. I have a dog for that. You should just understand that every day, all day, every hour, every minute, I am effected by one or more of my chronic illnesses or syndromes or nasty little devils that make my life a living hell most days.
I won’t list everything I have going on because that will be the most boring post EVER. But the big three – or as I like to call them – the mighty triad that wants to kill me or least make me suffer. I really need a meaner sounding name for them, come to think of it.
Anyway, the chronic issues I am dealing with are:
Chronic daily headaches & chronic migraines (and their good friend cluster headaches). And yes that does mean every singleday I have a headache at or above a pain level of 5 or above. That is a good day. I also have a minimum of 12 migraines a month. A good month. Those are just examples. It can be worse. It is rarely better unless I have been in the hospital and they have medicated it down to a zero pain level. That usually takes about 9 days of nonstop IVs.
Fibrmyalgia is along for the ride. I don’t even know how to explain all of what fybromyalgia does. But I can share what I go through with this.
Chronic muscle pain or spasms (like having the flu all the time, 24/7)
Severe fatigue (Again like the flu. You need a nap after a shower.)
Insomia (which is a bitch seeing as you are so fatigued but sleep is not going to happen)
Your body feels all kinds of stiff when you first wake up. (Feel like I’m Rice Krispies with the snap, crackle, and pops going on.)
The awful “fibro fog” where I have retention of Dory from finding Nemo (Feel free to call me Dory. Seriously, my retention is horrible a lot of the time.)
Migraines (YIPPEE) and tension headaches. (YAY)
Feeling anxious (Me? Yep!) or depressed (Duh)
Tingling in the face, arms, hands, legs, or feet (Too often to count. Like the pins & needles when your foot goes to sleep)
Exercise kicks my ass (even more than before)
(And the one no one talks about) GUILT Seeing as it is an invisible illness, I am always apologizing or feeling guilty if I have to nap or not go out with the family. Guilt sucks.
Now Lupus is the one I know the least about because it scares me the most. I realize that is not the wisest route to go, but that’s me. I am very aware of the chronic headaches, migraines, and cluster headaches and I do know my fybromyalgia but when it comes to Lupus I can only tell you a few things.
With Lupus, I know my ANA is very high. (Meaning the my good cells are really awesome at kicking my own body’s butt.) What I do know that has shown up:
Fatigue (Like with fibro, it is worse than the flu)
Fever with no explanation (I wake up every day with one and have one many nights)
The butterfly rash on my face (So not a big fan of this)
Hair loss (It’s bad enough that I see grey popping in. I don’t need to lose what I have.)
Swollen joints (I mean it is seriously hard to put a bra on, people.)
Dry mouth & eyes (I literally never leave home without a water bottle and eye drops.)
Kidney issues (This is also a side effect of all of my meds. Need the meds, need the kidneys.)
Gastro issues- (Like reflux so bad it is burning my vocal cords and changing my voice)
So, there you have it. That is a day in the life of Chronic Jenn. Anyone want to switch? Nah! There is no one I would ever wish this upon. I take it upon myself before I’d ever wish it on someone else. I’ve got this. I’m kind of a badass now.
Ohh Emm Geee! Look who is blogging again. Yes, I realize it is NaBloPoMo (National Blog Posting Month) but no, I am not blogging because of that. And I also know it is NaNoWriMo (National Novel Writing Month) and rather than sign up for that, I may dust off something I was working on. And, yes, it is also NaNaTaMo (Natioanal Nap Taking Month) and I most definitely will be taking advantage of that particular tradition.
Anyhooooo, I realized most of the things I would’ve normally blogged here, I have been microblogging on Facebook. However, I haven’t been on Facebook for almost a week and you know what? No one has even noticed. Facebok tends to give you a false sence of intimacy. Not with everyone but with many. Especially when it comes to my chronic illnesses and bad days. My high school friends don’t want to hear about that. Neither do the people I worked with on campaigns a year or two ago (or more). However, I will add that a couple of weeks ago when I hit a wall of pain and a very dark place and gave a shout out for help, many, many people came forward to be there to help pick me up. That meant everything to me. So, there are awesome exceptions. I may pop my head in now and then but it hasn’t missed me so why should I miss it? Am I right?
So if I am going to be here more often, I need to clean house. Basically, I have some big changes coming up for my little home here. Can you believe I missed my Blogiversary? 12 years! 12YEARS!! Now it’s closer to 12 and a half. Nevertheless, can you believe I have been writing here for 12 years. Granted, I have been terrible about being consistent. But I need my space here to be share my thoughts freely. If you come here, it’s your choice. Unlike Facebook when I just pop up in your newsfeed, you choose to come to my home here. I am dusting her off, washing the windows, fluffing the pillows, and lighting some candles to make it smell cozy and homey. And of course, there is always coffee ready for anyone who wants some. I hope you come here and keep coming back. I have set some tough goals for myself here.
For instance, this post was supposed to be about something totally different and more personal but I backed away. I’ll get used to being open here soon enough. (Or as they call it “blogging naked.”) The things I post may not be what my old readers want to read. And, yes, that scares me. But? I have to get back to being myself. I can’t be the person some people want me to be. At least not all the time. I have changed. Chronic pain and chronic illness have changed me. I’m sorry to those friends who couldn’t handle the changed in me and had to walk out. I understand and I hold no grudges. It’s rough to have someone with chronic pain and illness in your life. I get that.
But as I write this, I can’t help but wonder if personal blogging is still a “thing” or have bloggers turned to microblogging on sites where they blog in sound bites? I guess we’ll find out. Are you ready to figure this out with me? Grab my hand. Let’s close our eyes. Now… Leap!